My symptoms were severe symmetrical joint pain, no swelling or heat (wrists, ankles, hips), overall terrible crappy feeling, low fever, shaking chills, muscle aches in upper front thighs. This episode came on suddenly with the joint pain the first symptom. I had been mentioning for 3 years to my doctor about these symmetrical joint pains, but not asking for treatment, however this episode of pain was far more significant then in the past. The doctor prescribed voltarin and vicodin which I immediately began taking before having the bloodwork done. RH, ESR and CRP came back border line positive. By this time I had stopped the previous meds as I was not improving and was halfway thru a six day steroid pack, when my doctor sent me for additional bloodwork as the ANA had come back positive with speckled pattern. They did anti ds, anti sm and anti rnp, which were negative but Complement 3 and 4 was very low. The steroids did eliminate my symptoms, but they returned during the taper before I finished the pack. After a couple of rweeks, the other symptoms have resolved other than the joint pain which waxes and wanes but is not as severe. My primary care doctor suggested a consult with an immungologist, however I deferred in light of my improvement as I don?t want the specialist to dismiss me with a ?what are you here for? because with my insurance, there are few I can see for second opinions. From what I have seen on the web, my lab results do not diagnois lupus although I have seen the mylar rash (or could it be roscea?) but it was not present during the times I saw my doctor, nor is it now. The question is this, could taking steroids while having the anti-ds, sm and rnp bloodwork drawn cause a false negative?
Lupus Q & A
I have had swelling and inflammation in my left ankle for over a year, which started when I was five months pregnant with my daughter – she is now ten months old and there is no sign of it disappearing. My doctor ordered bloodtests, the results from December show an ANA of 1:640 with a smooth staining pattern, ESR rate of 24mm/h, Plasma C Reactive Protein 13.0mg/l, FBC Normal, White cell count normal, liver function normal, HLA B27 antigen normal. The most recent test in April shows anti-cardiolipin antibody rate normal, a slightly elevated Plasma C level of 15.0mg/l, FBC and white cell normal, ESR rate 39mm/h. Can you tell me what this means – I have no other symptoms whatsoever and am healthy apart from the swollen ankle?
I have had regional pain in my back and neck. I was tested and my ana panel had a SSA Level of 148. What does SSA Leve indicated?
I have had off and on periods of extreme hair loss, joint and muscle pain, fatigue and a skin rash for the past year. My PHP ran some tests thinking lupus, but the ANA came back negative. My sed rate was 32. My RF was also negative. She wants me to see a specialist, but said it is probably not lupus. Can you have a negative ANA and then it turn positive? Is the sed rate indicating something to worry about?
What do you think of ELISA testing for ANA as opposed to IFA testing?
My mother was diagonsed with polychrondritus(sp) (I am unsure of how to spell this) about 20 years ago. She is having a flair up and is having a hard time. She was looking to see if there was any more current information on this. I can not even find any information on it on the net. Do I have the right word? Does it go my another name?
How is it possible to have lupus, fibromalgia and arthritis at the same time
Recently, I received a phone call one night telling me that there had been a brea kthrough development at John Hopkins for the treatment of SLE. It had to do with a Chemo treatment that was showing great promise. I was told the news stated that after two year post treatment with this particular treatment there was no evidence of SLE in the trial patients. I have searched your website and I am unable to locate any information on this. Can you help me locate the information. My 11 year old daughter was dx’d with SLE when she was nine and is now two years into her treatment. She is being treated at Riley Childrens Hospital, Indianapolis. While the treatment has been somewhat successful, her c3 c4 levels see to be somewhat sporatic. With her SLE she has experianced renal problems. As you are aware, in children this young appearntly, the treatment process is somewhat a guessing game since very little research has been completed on SLE and children this young. The protocal changes frequently just to see what will work. Anyway, if you could provide a link to the information that I am seeking it would be helpful.
I have had a ANA of about 1:80 for years- the only other symptom I have is mild joint pain in my knees, and shoulders (only). I am a white male 42 years. My ESR has always been normal as has been my other blood test (albumin etc). What could cause a ANA that high and joint pain? I have never had an unexplained fever either.
I have lupus and am currently in my 15th week of pregnancy. I have a superficial blood clot in my arm, and am allergic to aspirin. What is the best treatment option to help with the blood clot, and more importantly, to prevent further complications for the baby (i.e. placental clots, slow growth, etc.)