what is temporal arteritis, its causes, effects, treatment, ect, ect.
Vasculitis Q & A
My grandmother recently passed away from Wegener’s in March 2008. She had went to a lung specialist for ten years or more with the diagnosis of COPD, even though she never smoked. I find that research does not know the cause and there really isn’t a genetic link. However, my grandmother’s brother died from Wegener’s a year before her. Is this a disorder that is often misdiagnosed or rather under diagnosed?
What are the effects of methotrexate in the lungs, short and long term. (for a WG patient)
I am a 49 year old female. I have had scleritis for 8 years and this year with that flare up I also had 2 bouts of pleuritis and I had joint swelling in my knees and wrists. I had posterior scleritis and I am being treated with prednisone. I got with a Rheumatologist and so far have tested neg on lupus, RA, and several other test. The dr. wants me to get a second opinion, but suspects I have spondyloarthropathy and I am taking mexetrcate once a week. My labs make me look very healthy, but my body aches and is stiff, but I don’t have a terrible time getting out of bed. Is this in my mind?
What starts vasculitis? I have been on imuran since last summer after being diagnosed with it. Can it ever go completely away and what does the imuran do besides stop the skin ulcerations on my leg. One ulceration needed 3 debridgments. The scar is BIG and ugly so I guess I’ll give up on swimsuits and shorts. Not be vain about this though.
Is there such a thing,and is it life threatening?
I had a MRI that showed damage to the brain. I had a Second MRI and a MRA both confirming. The resulting opinion being vasculitis. Opinion of physician being I had it. I got over it. The end. I am uncomfortable that : No understanding of how I got it. Why would it just stop on it’s own? Will it come back? Is this an early sign of more things to come that could be treated now? I have aches and pains especially in thumb areas and feel it is a form of arthritis, are the two connected?
PAN has caused damage to the nerves controlling my Moms hands and feet. My Mom has no use of either feet nor hands. Mom is 74 years old and was always active and in very good shape She was diagnosed mid-March, 2004. What are the prognosis of her nerves repairing themselves and what would the time limit be, or is this not a normal sympton caused by PAN?
My father was recently diagnosed with Vasculitis. Do you know of any centers in the Chicago area that specialize in treatment for this.
An indisputable biopsy ten years ago indicated PAN which seemed at the time to be somewhat limited to skin and joints with a relapsing and remitting course. I have had a history of microscopic hematuria. Upon examination there were a significantly large number of casts, but creatinine clearance was fine, and there was no evidence of proteinuria. The nephrologist believes this indicates microscopic polyangiitis. The decision was made to remain on 15 mgs of methotrexate a week along with 10 mgs of prednisone rather than more aggressive cyclophosamide therapy unless there is further indication of damage as the hematuria was present all along and has not affected kidney function. Is it possible to have two forms of polyarteritis nodosa at the same time? Does the disease mutate? Does it amke a difference to treatment to have a different name attached to the same symptoms? Would a course of cyclophosamide help beat this into remission?