Hello, I am a mother of 2 and in extreme pain! I have been seeing a rheumatologist for the last 5 yrs.I was diagnosed with endometriosis,IBD,Fibromyalgia,Reiters Syndrome and AS(positive HLA-B27).He has tried me on many medications, but nothing seems to work.He seems to be concentrating on the endometriosis(which i have had several surgeries for but do not give me relief)He is at the point where he doesn’t know what to do with me. My symptoms are severe shoulder and neck pain on left side which leads to migraines,lower back pain,I have problems rolling over in bed, constant hip and buttock pain,my knees,ankles and tops of feet ache constantly. I cannot sit or stand for long periods of time.I am currently taking sulfazine,etodolac and oxycontin.The oxycontin is the only thing that seems to work as a temporary fix but I know it can be addicting. My question to you is,I feel the AS is what causes most of my pain. I have been dealing with this since 1995 and am at the end of the rope here.Do you think your facility can help me? I live in New Jersey and would be willing to travel to get some relief.Any advice would be greatly appreciated, thank you, Denise
Ankylosing Spondylitis Q & A
Since having my girls 13 yrs.ago I began to notice that my posture was getting bad and thinking that it was from holding and carring the girls in ’95’ I saw a dr. that immedentaly did testing for as and it was positive. since then I’ve had ‘iritis’ in my left eye 3 yrs. ago and just finished up with it again in the right eye(very painfu) Im doing excerises and stay active but have some problems swallowing im bent at the shoulders but i am holding off on heavy meds because I dont want to wreak my immune system.. I am not in bad pain but am uncomfortable and it looks bad any suggestions?
What are the symptoms of ankylosing spondylitis?
My biopsy reads as “small vessel leukocytoclastic vasculitis with osinophiles”. I have taken Prednisone for three months with different doses (pills per day in a week: 4/w1, 3/w2, 2/w3, 1/w4, 1.5/w5, 1.5/w6, 3/w7, 3/w8, 3/w9, 3/w10, 2.5-2/w11, 1.5~1/w12, 0.5/w13). In the three months my symptoms have never come to a level of full control, though the situation changed up and down. When I increased the doses, the severity level (size and scope of the rashes on my skin) was decreased in the first two weeks; When I kept a constant dose, it started to get worse after about 2 weeks; When I reduced the dose, it quickly became much worse. Why and what should I do?
Could you tell me of anyone specializing in psoriatic arthritis in Michigan? Thank you
I am seriously concerned that i trigerred the onset of RA by doing serious injury to my wrists 3 years ago, suffering blows to both wrists , inside and outside, for no other reason than pure frustration and blunt force trauma. It was totally unecessary and i feel shattered by this. I feel i have left myself and my family down in a moment of madness. My life is ruined over this! I am devastated ! ger
As I have AS since I was 16 years old and I am 61 now I have the most problem with my knee.I was diagnosed to have osteoarthritis. I can’t hardly walk anymore and I am thinking of getting a knee replacement I am anxious that if I would get a knee replacement, if that would fix my problem or would the tissue and bones around the artificial knee still be affected with inflammations and is such an operation useless for me because I have AS. My knee now gets stiff and makes saw like noises. The quality of my life is diminished and I am depressed about it. Can you help me with an answer?
greetings, im a physician and newly diagnosed spondyloarthropic. ive seen several researchers point toward phopshpocitrate as a potent inhibitor of tgf-beta in murine models of AS (j cliford, h krug). infact, its use appears to inhibit or stop ankylosis altogether. i believe bisphosphonates failed to have a similar effect in mice. despite clinical improvement in humans, i know its unclear what effect bisphosphonates have with regard to ankylosis. my question is: are there plans to test phopshpcitrate, or prehaps closer cousins to it, in humans? enjoy, josh
My husband has AS and we have been trying to decide what kind of bed would be most ideal for him. We’ve heard mixed reviews about the Tempur-pedic and good reviewes about the Sleep Number beds, but they are incredibly expensive. Are these kinds of beds really best for AS or is there something we should look for that is ideal for his condition? Thank you.
I am waiting to see a Rheumatologist, as appointments in my area are booked up over two months in advance. For 2 months, in the evening I have acute tendon pain (unilateral, each night somewhere different.) Wrist, thumb, knee, foot, shoulder, elbow. By morning it is always gone. All of my bloodwork came back normal–no to Lyme’s, 3 negative RA tests, no gout, no increased sed rate or sign of infection. My colon feels distended, and I have gained 10 pounds in the last month, which is very, very unusual for me. NSAID’s Mobic is not helping (21 days), now my family doctor wants to prescribe Celebrex.