I was diagnosed last May 2005 with Adult Onset Stills’ Disease. I am not happy with what my physician is trying to get me to use (Kinaret), I was reading that Etanercept has shown to work. Would I be able to see someone at John’s Hopkins for my disease. Do you have any information websites that I can access to help me understand what is the best treatment for me. I work in a hospital and I am exposed to viruses all the time, I have been on Methotrexate for 9 months now, I have gotten my flu vaccine, my pnemonia vaccine also. I just like to stay proactive in regards to my disease so I know I am doing what needs to be done to maintain a healthy lifestile the best that I can. Any help would be greatly appreciated.
I would make an appointment with the Johns Hopkins general rheumatology clinic at Good Samaritan Hospital. (info on this website). They can review your history and make appropriate recommendations. In the research abstracts that I have seen, Kineret did look promising.