Woman seeking advice for Ankylosing spondylitis

Question

Hello, I am a mother of 2 and in extreme pain! I have been seeing a rheumatologist for the last 5 yrs.I was diagnosed with endometriosis,IBD,Fibromyalgia,Reiters Syndrome and AS(positive HLA-B27).He has tried me on many medications, but nothing seems to work.He seems to be concentrating on the endometriosis(which i have had several surgeries for but do not give me relief)He is at the point where he doesn’t know what to do with me. My symptoms are severe shoulder and neck pain on left side which leads to migraines,lower back pain,I have problems rolling over in bed, constant hip and buttock pain,my knees,ankles and tops of feet ache constantly. I cannot sit or stand for long periods of time.I am currently taking sulfazine,etodolac and oxycontin.The oxycontin is the only thing that seems to work as a temporary fix but I know it can be addicting. My question to you is,I feel the AS is what causes most of my pain. I have been dealing with this since 1995 and am at the end of the rope here.Do you think your facility can help me? I live in New Jersey and would be willing to travel to get some relief.Any advice would be greatly appreciated, thank you, Denise

Answer

Dr. John Flynn has been seeing patients with AS and I would call and arrange an evaluation.

Alan Matsumoto, M.D.

About Alan Matsumoto, M.D.

Part-time Faculty, Division of Rheumatology
Johns Hopkins University