The diagnosis of Ehlers Danlos Syndrome (EDS) may not make much difference in terms of your treatment plan, but in general, I am of the opinion that a definitive diagnosis may help in terms of evaluating new problems and establishing prognosis. However in our crazy medical insurance system, I always worry about insurance discrimination when labeling someone with a genetic illness.
About Alan Matsumoto, M.D.
Part-time Faculty, Division of Rheumatology
Johns Hopkins University