CREST Syndrome and related pulmonary involvement

Question

I am a former patient of Dr.Wigley.He followed me for a few years while I lived in Baltimore and worked at JHH.I have CREST syndrome.My PFT has gradually gotten worse and my breathing is worsening.My rheumatologist is suggesting Cytoxan.How are you treating ILD in your patients with CREST or Scleraderma?Are there any clinical research studies that I could be involved in?I am very concerned about my condition and the related shortness of breath and weakness.

Answer

Dr. Wigley has an ongoing study of cytoxan for scleroderma lung involvement. You need to call Dr. Wigley at the Johns Hopkins Scleroderma Center and it may be worth a trip back to Baltimore for a re-evaluation.

Alan Matsumoto, M.D.

About Alan Matsumoto, M.D.

Part-time Faculty, Division of Rheumatology
Johns Hopkins University