- Can I use JH Arthritis without providing any personal information?
- What information are we collecting and how are we collecting it?
- What about the information collected through our interactive forums?
- How is the personal information I provide to the Rheumatoid Arthritis Activity Minder stored?
- What is our policy on disclosure to outside third parties?
- Other notes about online privacy
- Your consent to this agreement
Can I use JH Arthritis without providing any personal information?
Yes. All visitors are welcome to access the content of the JH Arthritis Web Site free of charge and free of any registration process.
What information are we collecting and how are we collecting it?
Every computer connected to the Internet is given a domain name and a set of numbers that serve as that computer’s “Internet Protocol” IP address. When a visitor requests a page from within the JHU Arthritis site, our Web servers automatically recognize that visitor’s domain name and IP address. The domain name and IP address reveal nothing personal about you other than the IP address from which you have accessed our site.
Our web site may use “cookies”. Cookies are small computer files that we transfer to your computer’s hard drive that allow us to know collect information. We use this information to examine our traffic in aggregate, but do not collect and evaluate this information for individuals.
Aggregate information is non-personal information about you that does not allow you to be identified or contacted and that is combined with the non-personal information of other visitors. This information simply tells us about the activity on our web site, such as what pages within the site are most popular, how much time visitors spend on the site, and how often they return. JH Arthritis may provide this aggregate information to third parties, such as our sponsors. Our Web servers do not capture and record e-mail addresses of the visitors.
You can set your browser to reject all cookies. By using the help button in most browsers, instructions on how to reject and remove cookies can be found. Rejection of cookies will disable the ability of our web site to remember your password information when using our interactive forums, such as the Message Board and Rheumatoid Arthritis Activity Minder, and require you to input your login information each time you visit. Any photograph, or otherwise identifying information of a patient, faculty, or staff of the Center, appears on the Site only through consent of the individual.
What about the information collected through our interactive forums?
We may also request your e-mail address or mailing address (Ask the Expert, Message Board, Survey) for the purposes of conducting a survey or to provide additional services. Whenever we request the identity of a visitor, we will clearly indicate the purpose of the inquiry at the time the information is requested. We maintain a strict “No-Spam” policy, which means that we do not sell, rent, or otherwise give your e-mail address to a third-party. When you use our “Email a Friend” application, JH Arthritis emails the content you designate to your friend’s email address and lists your email address as the sender. JH Arthritis uses your friend’s email address only for the purpose of sending your email request and for no other purpose. If we were to change this policy, we would request your consent.
In addition, JH Arthritis will not send you email that you have not agreed to receive. We may from time to time send e-mail announcing new JH Arthritis information. You may change your mind at any time and remove your email address and “opt-out” of all future announcements.
What is the policy for the personal information I provide to the Rheumatoid Arthritis Activity Minder?
The JH Activity Minder collects only the personal information you voluntarily provide to us. We collect this information when you create your profile and complete each assessment.
Can my user name and password be linked to the medical information I provide when completing each assessment?
No patient/user identifiable information is transmitted when you complete individual assessments. This means that your data cannot be traced back to you, either during transmission or while stored on the database. The JH Activity Minder database is stored on a secure server. We cannot link the medical information provided by visitors when completing an assessment to a specific individual.
Why do you need my email address?
Your email address is requested only for the purposes of recovering forgotten login information and is not linked to your medical information. Should your login information be lost, there would be no way for you to retrieve any of the data from previous assessments that you submitted.
What about the security of my summary report that I print for my doctor?
JH Arthritis stores the information you provide in the JH Activity Minder for the purposes of providing visitors the ability to maintain a record of their disease activity over time. The ability to generate a summary report is available. If you choose to print this report, the security and secrecy of the printed report is your responsibility. JH Arthritis is not responsible and does not control any third party that you choose to share this information with.
Does JH Arthritis use the medical information from these assessments?
JH Arthritis may use the medical information collected for the purposes of doing research about rheumatoid arthritis on the aggregate data. Data for this research is collected from the whole group and cannot be linked to specific individuals.
JH Arthritis will not disclose any personal information it gathers from you to third parties. However, JH Arthritis will disclose personal information when required by law or in the good-faith belief that such action is necessary to:
- Conform to the edicts of the law or comply with a legal process served on JHU Arthritis Center,
- Protect and defend the rights or property of the JHU Arthritis web site, or visitors to JHU Arthritis,
- Identify persons who may be violating the law, the legal notice, or the rights of third parties,
- Cooperate with the investigations of purported unlawful activities.
JH Arthritis uses reasonable precautions to keep the information disclosed to us secure. We are not responsible for any breach of security or for any actions of any third parties, which receive the information.
- Posting information in a public forum (Ask the Expert, Patient Forums)
Please be aware that whenever you voluntarily disclose personal information online within a public forum, that information can be collected and used by others. Therefore, any personal information you post online that is accessible to the public may cause you to receive unsolicited messages from other parties in return. Please use discretion when posting to any online forum.